Saturday, February 13, 2010

Personal Health notes

I can't get pictures to upload so I am just posting some notes as I begin my journey to feel better...

These notes are for me to remember as I go through my illness, I thought this was the best way for me to do it.

I have my daughter as my Power of Attorney on my medical and Les as second, the medicines we are doing are my only option, if they don't work I must go to a specialist in pulmunary and cardio functions. I want to avoid the expence of the travel to Charleston and I trust my Dr.
I may say things that seem a little morbid but I am a control person and know I will never live as long as my Grandmother, I pray I will see Charli graduate but am aware ther is a chance I won't so I need to make every day count...

Wednesday Feb. 10 I get my oxygen after talking to Dr Holman, I already feel less tired than before but still can't do simple things without getting out of breath. I got my Handicap sticker this week, too, it has me picture on it.
My Cytoxan I.V. starts Monday. I must drink Lots of fluids the next few days and go to the bathroom often. This is to prevent my bladder from bleeding. Also he will give me something in the I.V. to prevent nausea which is another side effect. Hair loss is another but Gina will help with that, there is a great shampoo called Nioxin for chemo and other problems that helps thicked hair and prevent losing it.
My weight is 131, that is something I will watch carefully, I started 50 MG of my steroids Thursday and already my face looks like I have a sunburn. Dr Holman gave me Restoril 15mg to help me rest, so far it makes me sleepy but I still sleep about 4 hours then I wake up, it is good sleep though. The Procardia is helping my hands and feet so they are not purple anymore.
I plan to give up my class in 2 weeks, I will try to get disability and pray it woun't be a long process! I have reached my deductable already But have all these new medicines and have to pay monthly for my oxygen above what insurance doesn't pay. That is really going to be hard since I will be giving up my income.
I saw the funniest sign yesterday! It said "Give a gift of Life Insurance to your loved one for Valentine's" Les and I laughed, if he gave me life insurance I would worry! He would worry even more because I watch the CSI, Forensics shows.... Go Figure, LOL!

Friday, February 12, 2010

We finally got some REAL snow! This was about 6:00

This was just after 4:00, it started around 3:30, Charli had a great time, I couldn't stay long, it was too cold and I had to change of my oxygen tank. The first one had a cracked valve and the second kept working constantly insted of pulsing only when I breathe. Charli has gotten used to it and we call it my robot and she keeps saying "Meme feel better?" She has stuck with me and keeps kissing me and rubs my back when I cough, I think that is so sweet!!
I had to have more blood tests today before my I.V. starts Monday. I will have blood tested every two weeks now.
It already looks like I have a sunburn after just two days of upping my Prednisone from 10mg to 50mg. Please pray the steroids won't get me fat again and have a fat face! Also pray I wouldn't lose my hair!

Wednesday, February 10, 2010

Charli sat making me some "Alphabet Soup" and doing my make up while we were waiting on the man bringing my oxygen. She was terrified of the small tank, I told her it was my Robot. I start my new meds Monday, It will be an I.V. every 4 weeks, if it doesn't start working I will have to go to a specialist in Charleston. I have to go from 10mg of Prednisone to 50 starting tomorrow.