Personal Health notes

I can't get pictures to upload so I am just posting some notes as I begin my journey to feel better...

These notes are for me to remember as I go through my illness, I thought this was the best way for me to do it.

I have my daughter as my Power of Attorney on my medical and Les as second, the medicines we are doing are my only option, if they don't work I must go to a specialist in pulmunary and cardio functions. I want to avoid the expence of the travel to Charleston and I trust my Dr.
I may say things that seem a little morbid but I am a control person and know I will never live as long as my Grandmother, I pray I will see Charli graduate but am aware ther is a chance I won't so I need to make every day count...

Wednesday Feb. 10 I get my oxygen after talking to Dr Holman, I already feel less tired than before but still can't do simple things without getting out of breath. I got my Handicap sticker this week, too, it has me picture on it.
My Cytoxan I.V. starts Monday. I must drink Lots of fluids the next few days and go to the bathroom often. This is to prevent my bladder from bleeding. Also he will give me something in the I.V. to prevent nausea which is another side effect. Hair loss is another but Gina will help with that, there is a great shampoo called Nioxin for chemo and other problems that helps thicked hair and prevent losing it.
My weight is 131, that is something I will watch carefully, I started 50 MG of my steroids Thursday and already my face looks like I have a sunburn. Dr Holman gave me Restoril 15mg to help me rest, so far it makes me sleepy but I still sleep about 4 hours then I wake up, it is good sleep though. The Procardia is helping my hands and feet so they are not purple anymore.
I plan to give up my class in 2 weeks, I will try to get disability and pray it woun't be a long process! I have reached my deductable already But have all these new medicines and have to pay monthly for my oxygen above what insurance doesn't pay. That is really going to be hard since I will be giving up my income.

I saw the funniest sign yesterday! It said "Give a gift of Life Insurance to your loved one for Valentine's" Les and I laughed, if he gave me life insurance I would worry! He would worry even more because I watch the CSI, Forensics shows.... Go Figure, LOL!

We finally got some REAL snow! This was about 6:00

This was just after 4:00, it started around 3:30, Charli had a great time, I couldn't stay long, it was too cold and I had to change of my oxygen tank. The first one had a cracked valve and the second kept working constantly insted of pulsing only when I breathe. Charli has gotten used to it and we call it my robot and she keeps saying "Meme feel better?" She has stuck with me and keeps kissing me and rubs my back when I cough, I think that is so sweet!!
I had to have more blood tests today before my I.V. starts Monday. I will have blood tested every two weeks now.
It already looks like I have a sunburn after just two days of upping my Prednisone from 10mg to 50mg. Please pray the steroids won't get me fat again and have a fat face! Also pray I wouldn't lose my hair!

Charli sat making me some "Alphabet Soup" and doing my make up while we were waiting on the man bringing my oxygen. She was terrified of the small tank, I told her it was my Robot. I start my new meds Monday, It will be an I.V. every 4 weeks, if it doesn't start working I will have to go to a specialist in Charleston. I have to go from 10mg of Prednisone to 50 starting tomorrow.

What a great birthday! First my kids gave me this wonderful bird house and cupcakes then Gina and Jamie gave me a surprise party at church! Even my best friend Marie came! I really enjoyed the day, if if I did have a mammogram, LOL!

Come on over to SBE and do the Scripture Challenge!

For the first of our 2010 challenges we will be looking at the Word of God as revealed in scripture, so the verse for Week 1 comes from the first part of Hebrews 4:12 which says:
“For the Word of God is living and active. Sharper than any double-edged sword.” ... it penetrates even to dividing soul and spirit, joints and marrow; it judges the thoughts and attitudes of the heart.

** Be sure to read the General Guidelines to the challenge HERE, where you can find out what will happen each week. It will tell you how you can take part, what you will be receiving, where to post your submissions to, etc.

Here is a preview of your FREE Word Art for this week (the link to download the Word Art to use as part of your submission appears at the BOTTOM of this message, and will only be available until the close of this challenge):


* The deadline for submitting your creation for THIS challenge is midnight EST on Saturday February 6th 2010.*

Today was a day of Doctors, first Charli showed out at her's, she freaked when she had to take her jacket off! She had never acted like this! Gina had to get on the scales with her and it took 4 of us to measure her. She is 36" and weighs 25 lbs.
Next Gina had a blood test, she is pregnant! we are keeping it kind of quiet though because she doesn't want to go through what she did when she lost the last one.
Then me. I have few choices but to go on the medicines I did not want to before, I will have to quit my job and go on oxygen. My lungs are working at 41% and my heart is beginning to show damage from lack of oxygen. I actually get a handicap sticker for my car now.

I made a pair of earrings from the beads Twila gave me for Christmas, they turned out very pretty! I am giving them to a special lady at work who is 74 and has the infant room. I know she will be pleased!
Trey and Gina gave me their laptop last night, I hope I can put my PI program on it, I have only watched a DVD so far on it. We didn't have church today because of the ice so I got some things done I wanted to. Les had to work.

Got back a few minutes ago from Greenville, because of weather Fuddrucker's and A.C.Moore were closed so ate at Fatz and went to Target and H.H.Gregg. SO I didn't get my hamburger or the Hot Wheels frame I wanted and the Build a Bear and book I planned to get were put off until later, too. But Gina got her new Laptop so I got her old one.

I do not know if we can go to Greenville or not, am waiting to hear from Trey when Gina gets off. It's cold and wet and I have ice hanging from my bird feeders so I have not gotten motivated to do much yet. I have my Women's group coming Tuesday so I need to get going. Les hasn't gotten my box for my tree out of the garage yet, I did the part I do but between his back and gout he has managed to procrastinate quite awhile but I am lucky he even helps, If he didn't I wouldn't put up that big tree because I can't manage it alone.
Well off to do some laundry and clean my office.

Les and I took Charli to AT&T to get our new phones today, she was very good, never when near all the phones and stuff. She just danced and played with Merry Moose. When we got outside Les had left the car running the whole time we were in there! I was so tickled I couldn't talk! I told him he was lucky that I had taken my pocketbook in!
Then I handed Charli my old phone and she said "batteries?' because there was no picture and I took her it had batteries and she started playing and turned on the speaker and dialed 911! I told the lady I was sorry and explained what happened which make her laugh, too.
We then went to Wal-Mart which is not her favorite place But she was an angel and we got her a Pirate Brobee from YoGabbaGabba and she was a happy girl.
My tests didn't take as long as I thought they would. I had to sit in a wheelchair by the time I found a parking place at Self plus they were painting on the floor they do the Lung tests on and that really got me coughing. Thank goodness they did my Echo in a room to keep me away from the fumes which was nice. I can't hold near as much air as I did 18 months ago, I know I am a whole lot short of breath!
My Mom also went to the Dr and had a cyst removed and my MIL finally got out of the hospital.

Just a quick post before I go out the door, I had my annual meeting at work yesterday and am proud that I got the Best Classroom award! I got a $20 Wal-Mart card and a $50. Bonus check for going to the meeting. That will be great when Les and I go the Greenville Friday night or Saturday for my BD! I am so looking forward to Fuddruckers!

One of me new little girls got her finger caught in the bathroom door yesterday, she had followed a little boy who opened the door then closed it on her finger, I felt so badly! Her Daddy had to come get her because it rolled back the skin on the tip and I know it really hurt!

Well time to start my car!

I got this from my Secret sister today, it is my birthday gift. I am so looking forward to my birthday! I told Les I want bird feeders and garden gnomes to put in my yard. Lowe's has awesome feeders, the small ones I have have to be filled so often they stay empty a lot. I have always wanted some gnomes to put in my yard, too, and Big lots has already got them for the spring. After all the time I spend at Farmville I need to do my Real Yard, too!

This picture made Charli laugh! I told her it was 2 Charlis! I think it is adorable!

Today is Seth's birthday! I sent him a card but mailed it late so he may get it tomorrow or Tuesday.

My Grandmother gave me these flowers, they were almost dead then but really look Great!

I had my physical today, I have to have my mammogram on my birthday! I also have a round of tests next Thursday and have to go February 1 to talk about what we are going to do. Gina is going with me which does not make Les happy but I know she will help me make a decision and not pressure me.

Charli's 2

I took Charli a balloon today when I went to keep her, she loves them, we had a great day, she really loves her new kitchen and 'fixed' me hot chocolate and apple sauce.
Les can walk better now, I guess he will get to work Friday.

Charli's Party

Charli had her birthday party with her cousin Riley at Jumping Jax, she really had a great time! The McCall kids came which was super since they all love her so much.
We later went over to Kathie's for supper. Suzan cooked since Kat had just come home Saturday from the hospital but Les ended up getting sick, his knee is now very bad, we both didn't sleep last night so I am very thankful I got off early. (I had 2 kids)
I am going to take a nap and I guess I will take Les to Dr at 4:00 I do not know why he lets it get so bad before he will go!

I spent most of the day working on my cross stitch, but Les had to come home early and pull out his crutches and start the gout medicine, My Mom went to get the meds for him so I never got out. He had the car and I figured he would have to come home early.
His Mom came home from the hospital and we are going over after Charli's party.

Nice and warm today! Temp got in the 60's, that's good, our power bill jumped up over $100 this month and we keep our heat at 64!
Les is barely walking, even needed a cane to make it through the house tonight, his knee is pretty bad, at least his fever broke. My wrist is much better.
Another Fun day with Charli!

Charli and I had a wonderful day today! I love hearing her say Thank You over and over and she asked for what she wants to play with or eat. She was happy to see her Daddy today and he was happy to play with her!
When to Pizza Hut with Mom and Jeff tonight. Les had to come home sick, his knee is swollen and he can't walk. He had to go to the hospital late because his Mom had a reaction to medicine, I think the stress got to him.
My wrist is Much better! The knot has gone way down! I wish I had a picture before he took the cyst out!

This is a picture my DIL posted on Facebook of my DGS, Seth in his Christmas present.
Gina was sick with the stomach virus yesterday and actually missed work which is rare for her. Charli rode with her Pop to come get me at work then went home to 'take care of her Mommy'
I am going to take her as I go to see Dr King about my right hand today, Les is going to take his lunch to go with us because I don't know if I will be sore or not.