Alexis turned 17 today. She is a beautiful young girl.
Les came home sick with stomach virus. He is just finishing up Prednisone for knee.
Thursday, May 31, 2012
Tuesday, May 29, 2012
Ames pushes my sweaters out of my chair, climbs in and yells Roar wanting to see Dino Fun video! He knows how I work my Wacom pen and tries his best to copy me!
A young man was shot and killed in front of the house we lived in on Singletree left in the ditch! I pray his killer will be found!
Bob Dylan got Medal of Honor today.
Duke sent me fundraising letter.
A young man was shot and killed in front of the house we lived in on Singletree left in the ditch! I pray his killer will be found!
Bob Dylan got Medal of Honor today.
Duke sent me fundraising letter.
Monday, May 28, 2012
Saturday, May 26, 2012
Thursday, May 24, 2012
Wednesday, May 23, 2012
I really enjoyed the kids today. Ames is getting better about playing and siting in my lap. He really loves Les! When Les got home Charli and I started watching 80 music videos from movies, she liked that. Ames came with Les's hat on crazy and started dancing to Foot Loose. I will be glad when we can start taking him to Uptown events!
Tuesday, May 22, 2012
Monday, May 21, 2012
Sunday, May 20, 2012
Charli spent the night last night and we had a blast together! She wanted to have a Party so we got cupcakes and sang and had a pillow fight. She was more playful and talkative than I have ever seen her! She likes to do Sandy Cheeks impressions and I love to hear her talk. She still calls yellow, Lellow and changes letters in many words which is so cute.
Les' knee swollen bad, can barely walk.
Les' knee swollen bad, can barely walk.
Friday, May 18, 2012
Wednesday, May 16, 2012
Tuesday, May 15, 2012
Jamie lost her job today! She and Kerry are where we were in 2001!
For good news I got a check from my Uncle Danny and Aunt Cathy for $500. to start our fundraising! My jaw dropped! I have to send them a card ASAP!
So far I have 4 days to stay at Duke this time! I have CT scans, heart cath and ultrasounds scheduled.
For good news I got a check from my Uncle Danny and Aunt Cathy for $500. to start our fundraising! My jaw dropped! I have to send them a card ASAP!
So far I have 4 days to stay at Duke this time! I have CT scans, heart cath and ultrasounds scheduled.
Monday, May 14, 2012
Sunday, May 13, 2012
Saturday, May 12, 2012
Thursday, May 10, 2012
They called from Duke to let me know they were setting up next set of appointments for June 18th so I guess I still have a chance and need to start raising money, we used everything saved up on last two trips and gas is now $3.35 here and is much higher there, but that is down from before.
Went to see N'Tranze uptown, Charli ate her peanuts and laid in my lap relaxing.
Les still coughing but fixed bad brake, will do other side next week.
Went to see N'Tranze uptown, Charli ate her peanuts and laid in my lap relaxing.
Les still coughing but fixed bad brake, will do other side next week.
Wednesday, May 9, 2012
Tuesday, May 8, 2012
Les was too sick today and slept, he said he is going to try to work but I don't know if he will be able to. Gina is going to take me to therapy because the back brake show has messed up and Les is unable to fix but thinks he can drive to work, it sounds awful! Charli and I ate Birthday Cake ice cream and she told me it wasn't anyone's birthday so we sang Happy Birthday to her and I gave her a pretend gift, we laughed. She makes me laugh and so does Ames.
Monday, May 7, 2012
Been busy today! Got Hep B second shot before therapy (Made 30 exercise minutes) then had to take Les to Dr with upper respiratory infection and had to go to dentist to get wisdom tooth filled. Guess we have to go get his meds and something to eat soon. I lost 3 more lbs to weigh under 125 now...
Still no word from Duke but have seen most tests results online through the site.
Still no word from Duke but have seen most tests results online through the site.
Saturday, May 5, 2012
Wednesday, May 2, 2012
I started exercising with mask on and that helps last longer on treadmill, it is not a great thing to wear but works for high liters of O2 I need, using 15 to walk. Several of my tests are back and seem to be OK, especially the one I was concerned about
Ames is saying many words now and bringing diaper when he is wet. Gina sent me video of him on potty, so funny!
Tuesday, May 1, 2012
Monday, April 30, 2012

Charli had a cute little show at school tonight where she wore a US flag so Gina got her these cut boots to wear. She did a really good job! I have been very busy today, therapy, dentist and there, have to go back to dentist because I have a cavity in left bottom wisdom tooth, Yuck! He said it is because I have had this dry mouth that it popped up so fast.
Saturday, April 28, 2012
Found these pictures of the furnished apartments Les and I stopped by called The Hamptons, I sure would Love to live here! The kitchen is small but but has a garden tub in but baths and a screened porch. They even provide linens! Have washer and dryer, too!!
Ames is now calling me Meme and giving kisses!
Friday, April 27, 2012
Home from North Carolina! Took about same actual time to do interstate and rack roads because we made fewer stops and did a quick lunch instead. The Barium Swallow was not near as bad as last time, Elaine was my nurse and several of the people remembered us!
Was a little worried after talking to doctor but after test not so much. Found a wonderful place I would love to live! It is beautiful and 2 bedrooms, dining room and screened in porch. They blew my vein out doing the kidney test and it looks terrible! I also have one from blood gas and small one from blood draw. Laurie did my breathing test and said diffusion down 45% which is Not good.
Cora had an adventure, too, we dropped her at my MIL's before we left and a few minutes later the ADT man opened door and let her out! She has a chip and they found her so we picked up as we got home.
Was a little worried after talking to doctor but after test not so much. Found a wonderful place I would love to live! It is beautiful and 2 bedrooms, dining room and screened in porch. They blew my vein out doing the kidney test and it looks terrible! I also have one from blood gas and small one from blood draw. Laurie did my breathing test and said diffusion down 45% which is Not good.
Cora had an adventure, too, we dropped her at my MIL's before we left and a few minutes later the ADT man opened door and let her out! She has a chip and they found her so we picked up as we got home.
Monday, April 23, 2012
Saturday, April 21, 2012
Friday, April 20, 2012
Tuesday, April 17, 2012
Sunday, April 15, 2012
Saturday, April 14, 2012
Thursday, April 12, 2012
Wednesday, April 11, 2012
Tuesday, April 10, 2012
Monday, April 9, 2012

LOVE THESE!
Kids on spring break with Trey but I will keep them Thursday and Friday. Made reservations and ordered air today, Mama and Jeff staying in separate room.
Heart rate hit 147at therapy so did only 7 min TM
Sunday, April 8, 2012
Saturday, April 7, 2012
Charli loves taking orders and playing kitchen, I love this picture of her!
Going to bed to see if I can sleep, coughed all night last night.
There were only 10 kids at egg hunt but they had a good time, will post pictures later but added to Face Book if you want to see. Won a piece of jewelry from Rachel on Paperazzi!
Thursday, April 5, 2012
Wednesday, April 4, 2012
Tuesday, April 3, 2012
Monday, April 2, 2012
Sunday, April 1, 2012
Friday, March 30, 2012
Thursday, March 29, 2012
Wednesday, March 28, 2012
Monday, March 26, 2012
Sunday, March 25, 2012
Friday, March 23, 2012
Storm just came up quickly and blew over, maybe it helped the mud for the MudBog Jamie it doing tonight. Les was supposed to be off but ended up working about 5 hours, Ames took a very long nap while Les took Charli to his Mom's house. I am coughing with the kids still, having trouble shaking it. Uncle Calvin in hospital still, poor Bootsie needs rest!
Thursday, March 22, 2012
Wednesday, March 21, 2012
Tuesday, March 20, 2012
Waiting on the kids to come, Les went to take Mema her pills and will paint tshirts with Charli when he gets back, she slept until 9 so didn't go to school today, she is looking forward to coming today!
I found a picture of Honeycombed lungs like I have but it is much worse of course than I have...
Les still is sick from meds and called Dr because he is not getting better. Actually getting worse.
I found a picture of Honeycombed lungs like I have but it is much worse of course than I have...
Les still is sick from meds and called Dr because he is not getting better. Actually getting worse.
Monday, March 19, 2012
Did some gardening today, cleaned out the spot I put zinnias every year, today is the last day of winter and it is gorgeous outside! I did 14, and 15 at therapy today, my heart rate was up which it is when I drive.
Les and I when to Kathie's Saturday, she has rearranges her den so she can use the wheelchair, she has gotten where she used it all the time, she's not really even trying...
Les and I when to Kathie's Saturday, she has rearranges her den so she can use the wheelchair, she has gotten where she used it all the time, she's not really even trying...
Sunday, March 18, 2012
Saturday, March 17, 2012
Thursday, March 15, 2012
Wednesday, March 14, 2012
Tuesday, March 13, 2012
Monday, March 12, 2012
Les FINALLY went to Dr. Todd, he has a physical in 2 weeks, he possibly has RA or it might be the gout again but doubled the Indocin for now. I was a little low on exercise today, was too tired to do more than 8 minutes treadmill. I am still losing weight, down to 128 lb. Susan said I was using too many calories to breathe. I ate more this week end than I have in a long time, too, plus walked more than usual.
I saw on the news a soldier from Fort Lewis shot 16 Afghanistan people including children and he burnt the babies bodies! I am so saddened by this and am glad Jeremy is home on leave enjoying a spa vacation!
I saw on the news a soldier from Fort Lewis shot 16 Afghanistan people including children and he burnt the babies bodies! I am so saddened by this and am glad Jeremy is home on leave enjoying a spa vacation!
Sunday, March 11, 2012
Saturday, March 10, 2012
I had the best day I have had in awhile! Les and I got up early and went to Greenville where I found hte wire I needed for projects and I ate a Fuddburger and got the kids some Sponge bob and Princess socks from Target. Tonight we ate with the kids at Pizza inn, Charli really likes it there. I held out really well, am ready for bed early, though ;)
Thursday, March 8, 2012
Tuesday, March 6, 2012
Monday, March 5, 2012
Sunday, March 4, 2012
Friday, March 2, 2012
Thursday, March 1, 2012
Wednesday, February 29, 2012
Les took me out to eat at our favorite Chinese restaurant tonight, although it made me tired I really enjoyed it! Tomorrow I start Pulmonary therapy after we get kids. Turning in early, starting new sleeping pill so want to turn in early. Poor Les's foot is still very swollen and he can barely walk, I wish he would go to podiatrist!
Tuesday, February 28, 2012
Talked to Doctor Holman today but forgot to get script for cholesterol, will have to call back tomorrow. The tank of oxygen Sammy brought me was too low, he told me it should pressurize and be OK tomorrow, for the first time since I got home I used my portable today. Mama came over and played with kids awhile so I could talk to doctor.hea
Sunday, February 26, 2012

My free version of DIP ran out and they disabled the shadow tool so I can't use it to make pages any more which is a bummer, took my a long time to use my Xara program to make this page using a new kit coming out this week called Spring Is In the Air and I can't get it to save properly so I couldn't print if I wanted to!
Any way still didn't leave the house I told Les that I think I am physically not able to because I know I can't turn my air up high enough! We are going to call Lincare tomorrow and see what we can find out.
Saturday, February 25, 2012
Thursday, February 23, 2012
Wednesday, February 22, 2012
Tuesday, February 21, 2012
Monday, February 20, 2012
Doctor sent me medicine today, I have basically stayed in bed with congestion and I am nauseous because I don't have taste for anything. Got new phone today, it is cool. I got things straight with Jeremy, he had made me mad but we talked it through, Les always wants peace and says "you shouldn't tell him that!" but Gina is like me, if he says something that hurts my feelings I am going to tell him so!
Sunday, February 19, 2012

Found this on Etsy and thought it was Great!
I have not left house since I got home Wednesday, today it was wet and rainy and I have so much congestion I just stayed home. I am very glad I did! Les did not get home until after 2:00 because of the belt of the car coming off and breaking! I would have had a fit waiting in the car that long if my air was gone. I hope he got it straight!
Saturday, February 18, 2012

Found this adorable chore chart on Pinterest and thought it would be fun to make for kids Christmas! I thought I would go ahead and put on my to get done list and do one to match each child's room.
Have laid around and been very lazy today, car still had leak so he took it back, Les is feeling better and done some things around the house, I am glad to hear him talking a little though his voice not back to normal.
I need to keep track of how often he gets laryngitis, LOL!
Friday, February 17, 2012
Thursday, February 16, 2012
Rollo Virus
Monday Gina took the kids to the Museum in Durham and Charli threw up in car.... that was beginning, Poor Charli was so sick and stayed sick until this morning! Les got it during the night Tuesday and Wednesday could not even go into the clinics to meet doctor or go with me for tests! He had to wear mask, a gown and sit in a wheel chair while I went. They did speed me up to leave early but we really had a trip home!Thank God Ames slept while Charli through up.
Today Gina had to cancel all her clients and stay home because she had it and we had to have van towed to get it fixed.
Today Gina had to cancel all her clients and stay home because she had it and we had to have van towed to get it fixed.
Wednesday, February 15, 2012
After Duke
Well, I did learn ways to have a better quality of life while I was at Duke! I also learned that you have to work Very hard to get to the point you can get a new set of lungs, for example I must start doing Pulmonary Therapy again, since it is getting ready to transplant insurance should help. I also have to change sleeping pills and not refill my cough syrup because it is a narcotic. I have to get new oxygen tanks that will give me more oxygen because that is what's wrong and while I feel like I am dying sometimes, my air is nor strong enough!
The biggest thing is I Must have a smoke free house which means my brother Has to find some one who is kind enough to give him a room knowing he has no money and drinks and smokes! This is sad to me in many, many ways, Ames and Charli love him and he helps watch them when I am feeling bad and he is company when Les is at work! Plus I love him and do not want to see him go some where they will knock him over the head and let him die! The only place he has is with Rocky which is horrid to think about!
I am so tired I will share Duke trip later, I will say I saw inside Quality Inn and Hospital and that is it!
The biggest thing is I Must have a smoke free house which means my brother Has to find some one who is kind enough to give him a room knowing he has no money and drinks and smokes! This is sad to me in many, many ways, Ames and Charli love him and he helps watch them when I am feeling bad and he is company when Les is at work! Plus I love him and do not want to see him go some where they will knock him over the head and let him die! The only place he has is with Rocky which is horrid to think about!
I am so tired I will share Duke trip later, I will say I saw inside Quality Inn and Hospital and that is it!
Saturday, February 11, 2012
Thinking Ahead.
It's not the easiest thing to talk or think about but I want to make it as easy as possible when Gina and Les have to make my plans, I know if I post things here my sister Twila who reads my blog will help them find things as I will put a label to help them find. I love this urn! I love colors like green and aqua but Gina likes warm colors so this is a wonderful way to mix our tastes and she can display since she is my Keeper of the Urn ;) Les, Mama and any one that wants a part of me can have a piece of jewelry made, too!
I forgot to say yesterday I got $100 from Janette and $50 from Danny, Cathy, Robert and Wanda, I am so touched by how everyone has helped me so I do not have the stress of worrying about money this time!
Friday, February 10, 2012
Thursday, February 9, 2012
Wednesday, February 8, 2012
Wednesday Feb. 8
Did really well today, Sold $42 worth of jewelry and a special relative gave me $20 and sent snacks to travel, Goldfish will be very popular in our car, LOL! I did look up apartments and how many Autozones and we could afford to live there awhile if we had to.
I now have made almost $250 selling jewelry and gifts from friends, family and my Birthday Money! It make me feel great I don't have to take $$$ to pay power bill or anything to travel on!
I now have made almost $250 selling jewelry and gifts from friends, family and my Birthday Money! It make me feel great I don't have to take $$$ to pay power bill or anything to travel on!
Tuesday, February 7, 2012
I found a sight that talks a little about my glassware I have that Aunt Sylvia gave me, I wanted Gina to have it but she really doesn't want it and Jeremy and Juli have no need for it and my nieces would sell it so I don't know what I want to do, I am going to start pareing down though and getting rid of things, the more I think about it the more it makes sense. It's silly for me to hold on to material stuff that just makes clutter, I have packed up most of my VW's I may start selling some of them off, I don't know... I ate lunch with Marie and was so out of breath when I got home, I really had to lay down. It is just too hard to do anything any more
Too Much on my mind
I actually went to bed just after 11 last night but after reading some of the paperwork and the contract for Duke my mind is racing and I can't sleep. It said that if you live over 2 hours from Durham you need to relocate there before the surgery. This is really something I am going to have to talk to them about, If I can't spend time with Charli, Ames and Gina I know I will not care to get up in the mornings. I look at all this stuff I have, too, I am giving away clothes whenever I can and have packed up most of my VW's and stuff and am trying to get rid of stuff just in case I have to put things in storage or something and even asked for no birthday gifts (even Gina was good) but people that care about me keep giving me things that are nice but just make my problem worse. I am donating my books to church and think about doing an online yard sale with Facebook, I got 3 MORE orders tonight from a girl I went to school with, that makes 6 orders total Monday! I am going to throw away or donate toys and some of the other junk in my room and am thinking about selling some of my VW's.
I made my reservations for Duke and have to call to sett up my air. I talked to the man that owns the company called MedStay where they help people to relocate with transplants and he said he had apartments to lease but a motel for long stay is a good option, they serve breakfast and dinner 4 nights plus will shuttle you to Duke BUT it costs about $2000 a month. There is no way I can keep paying rent and utilities and pay that! As much as I hate to think about it I might have to put everything in storage and try to find another house when we get back. Well after I get back from Duke I guess we will have decisions to make.. I may not even be approved and it won't matter. That still means getting rid of stuff that clutters my life to make it easier on Les. I don't want to go through him having to decide what to keep when I have way too much and feel stressed about it. Little things add up so fast, when I was a teacher they all gave me coffee cups and I have 2 sets of them to match my dishes plus Twila gave me some cute Disney ones today so I have over 25 coffee cups! It's bad enough that when something gets broken I just think well that's something I don't have to deal with!
I did send Jeremy some of my art supplies. I may get a set rate box and send more, or I might give some to Christian at church I bet he would enjoy pastels. I guess I am feeling overwhelmed at the thought of leaving Greenwood. I do have a girl I went to school with that lives near Durham and she said I could stay there so maybe she could help find a room to rent to help us out.
I took a Benadryl to help me rest, supposed to go to lunch with Marie so I need to get up at a decent time so I need to go to bed soon.
Monday, February 6, 2012
Got $30 in the mail from England today plus made $20 more and got 3 orders! By Friday I will have over $200 I have made myself with jewelry to go to Duke! Twila came over and we brainstormed about making a backpack to carry my air in, I did forget that I go to lunch with Marie tomorrow but I carried it around before I got the bag ;)
Got $30 in the mail from England today plus made $20 more and got 3 orders! By Friday I will have over $200 I have made myself with jewelry to go to Duke! Twila came over and we brainstormed about making a backpack to carry my air in, I did forget that I go to lunch with Marie tomorrow but I carried it around before I got the bag ;)
Sunday, February 5, 2012
I made $36 more towards Duke, I need to set up my room and oxygen soon! I have several Family trees made and should have a good bit of jewelry money to pay for hotel! I love that I can make money and don't have to have hand outs, It makes me mad when people treat me like I am so broke and pitiful! Actually we are better off than we ever have been but I have to be careful and not spend extra and go crazy. Of course we owe lots of doctors and medicines take a chunk out of the budget but if I want something special like getting this computer I can do it!
Had a fabulous turn out at Church to dedicate the Multi Purpose room!
Had a fabulous turn out at Church to dedicate the Multi Purpose room!
Saturday, February 4, 2012
Friday, February 3, 2012
Thursday, February 2, 2012
February 2
Cyndy Fuller came over and we were going to make jewelry but ending up swapping beads and talking and she gave me 68 pairs of earrings to sell and some beautiful family trees! She wanted to help me get the money to go to Duke, she had priced the earrings at $2 each so that is what I will sell them for, I thought that was so wonderful of her! We go way back to Southside where she sat in front of me, so we have been friends 40 years. We also went to church together at NS Baptist.
Noel had the baby last night! Matthew Colin, Nic and Jennifer are adopting him so they are very excited. I said I wish he had waited just a couple of hours to be born on the 3rd, LOL!
Noel had the baby last night! Matthew Colin, Nic and Jennifer are adopting him so they are very excited. I said I wish he had waited just a couple of hours to be born on the 3rd, LOL!
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